Wonderfully Made!


We first learned about Turner Syndrome in 2004, when our daughter was officially diagnosed right after her birth. Prenatally, we knew there was a problem but we waited until after her birth to have genetic testing done. We had just come home from the hospital after her birth, when a nurse called our home to tell us the genetic test results. That was one of the strangest phone calls I have ever received. The conversation was all so matter of fact, as if she was telling me when our next doctor’s appointment was. What could I say but, “OK, thanks for the information!” But when I hung up the phone, I burst into tears. After wondering for four months, I finally knew exactly what was wrong with our baby girl, and it was the moment of acceptance.

In the last few months, the questions have been coming from our daughter, and she is coming to that place of acceptance too. Advice can be so freely and callously given from a variety of sources, and parents must decide what advice is worth taking. During the pregnancy, the genetic counselor told us that she was an accident, meaning there was no one to blame for this “mistake.” Therefore, it was acceptable that we could have an abortion because it was “a mistake.” That was one piece of advice I have never accepted. To accept that her life was a mistake, because she wasn’t “perfect,” is to not believe that God is in control. Is God good or isn’t He? Is He good all the time? Does He really care about us? Do I believe that God will help me through difficult times in this imperfect world? Yes, yes, yes, and yes. The best advice came from a nurse. She told us to have our answer ready before the questions come. Many people will ask questions, and if we prepare our answers now, we will be ready to face the questions. I took this to heart, because I knew that my own daughter would have the most questions, and I wanted to be ready.

There were several difficult topics that we knew we would have to tell our daughter about as she grew older. I wondered how and when I would have to explain these things to her. I contemplated this when she was only 6 months old, and I was already overly concerned about it. I felt that I needed some wisdom on this matter. What will I tell her? How will I answer her own questions? How do I explain why she must have a daily injection? How do I explain that she will probably never be able to give birth? How do I explain why she must have strange tests at the cardiologist’s? Amazingly, the Lord answered me immediately with this, “For You formed my inward parts, You knit me together in my mother’s womb. I will praise You, for I am fearfully and wonderfully made; Wonderful are Your works, and my soul knows it very well…..” Psalm 139:13-14

This answer was the all purpose answer to every question – the very foundation that would guide every discussion. You are wonderfully made…..purposefully made……miraculously formed……God’s creation is beautiful, and I can be thankful for who I am. And now, six years later, as the questions begin to unfold, I stand ready with God’s wisdom which marvelously puts our lives into the right perspective. While mystery is woven into understanding God’s sovereign plan, the truth is that this world is a sinful, broken, place where suffering invades every person’s life in some form, and the truth is that God is still in control and will one day bring an end to all suffering. In the mean time, we live by faith, trusting that God did fearfully and wonderfully make us, and we will praise Him rather than despise what we are.